Brain Health Registry


I’ve been involved in tracking my own brain health (as a caregiver for someone with Alzheimers / Dementia) since I moved my Aunt in with me in 2010.

While Auntie only stayed with me a year total, I’ve kept up with my participation in the brain health study as Alzheimers / Dementia runs in the family.

The medical agencies involved in this particular study are organizations that I believe are pretty cutting-edge, especially since I rely on Stanford for most of my own care.  I also relied on their assessments of my Aunt’s health to aid her in getting back on her feet despite her overall level of disability.

BHR Participants

While I have not been diagnosed with any particular brain malady, I was pro-active in doing my research to know that having COPD may compromise my brain health.  Having brain health issues in my family tree (I count 6 possible tags on my maternal side of the family – purple tags in the chart below), I believe it’s better to be aware and dealing with the possibilities that medication may help me stay in my right mind longer than if I ignore it all and do nothing.

6 incidents of dementia as of 2018

Add in the likelihood of dementia complications due to the COPD and underlying bodily inflammation, and it’s important to stay on top of worst-case scenarios in order to remain healthy.

Not sure where I’m going with this particular posting, however, I updated my brain testing this morning with the study, and was amazed at how poorly I feel I did.  Especially since I otherwise feel fine.

I also just checked my fitbit stats, and I didn’t sleep particularly poorly last night (and I’m showing an hour’s improvement over my longer term average of 5.5 hours per 24 hour period).

Sleep Log thru Sat Morning 19MAY18

Whatever’s going on, I’m feeling good today.

Working on the trip log books for adding notes while we travel.  (Mine will also contain some genealogy reminders, since we’re traveling through many places where my ancestors came from, and I may have an opportunity to learn more about my family history).

Bernard Family Tree

Tonight is P!nK, and I’m hopeful that I won’t get tired during the concert.  I’ll get my breakfast and meds shortly (now that it’s almost 1pm, as I’m still sticking with the daily fasting schedule to try and control my diabetes / tiredness).  As soon as I’m done with eating and meds, it will probably be nap time and then time to hit the road.  I so cannot wait to see if P!nk is as good in concert as she is on her albums.

Whatever you’re doing, I hope you’re having a good day.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s