Passing Through

img_0713

Life is full of constructs that enable each of us to survive.  In the case of the picture above, the long abandoned farm house (photo by Mike Williams of Missoula, MT) represents someone’s hopes and dreams, and the life they built while they were passing through this world.

Standing on its last legs between the prairie and the open sky, it whispers of the hopes and sweat of the family that once prospered on the land and now lives there no more.  I think of the constructs that each of us makes over the years to have a life the way we want it, juggling the emotions and involvement of others, until we can cobble together a life worth living.

carl-sagan

In my case, the construct is my own body.  Betrayed by nature at birth, the defects became apparent and my first surgery occurred at 6 months old.  Additional surgeries occurred at 3 years and 6 years and 9 years old.  These surgeries were hard, and the financial difficulties they imposed on my parents ultimately broke up their marriage (in my humble opinion).

When I was about 11, it became clear that we could no longer afford the luxury of ongoing repairs, as the entire family was disintegrating before my eyes.  In my case, I embraced the hard truth – that we were sacrificing the health of the family by my Mother’s insistence that I undergo repairs – and that I was as good as I was going to get.  I couldn’t get a job.  I couldn’t make my expenses go away, but I could grow up and accept that I was as good as I was going to get, and do what I could to alleviate the stress from things that I could not change.

poverty-is-a-failing

I cut way back and mostly stopped taking my medicines.  I started reading and I started looking for alternative health solutions.  My Mom said to me one night, when we were doing the dishes and discussing the “whys” of the world, “You have it within you to change your mindset.  People lived for millions of years without medications and without solutions, and they got by.” If I thought I could will myself better, she wasn’t going to stop me.  Even if she did caution me that medicine kept me alive, and that the family couldn’t afford a hospital bill.

Yes, I still got sick.  Mind-over-matter doesn’t help when one is dealing with birth defects and the changes of the season on those weaknesses.  But, I also survived.  I didn’t die at a young age as it was anticipated would happen.  (Think of “Beth” in the book, “Little Women”).  My impression is that situation was pretty much how they expected me to die at some point.

While my parents had differing agendas for my life, beyond getting married and having kids, if asked to expand on where they saw me in the world, there wasn’t anything that they dreamed of for me.  You lived, you got married. You had kids.  Your kids would take care of you in your old age, if necessary, and then you died.  You married to have a traveling companion (someone you could legally suck the life out of, under the rules of “til death do us part”), and your life was joined to that partner and those combined experiences.  Whatever happened, you’d survive if you were part of a pair.

But, I’d already seen the havoc the breakup of my parent’s marriage caused.  I saw that having a companion didn’t work for them, and actually added to the problems for trying to get through life without a lot of drama and stress.

I’d also been on the receiving end of recriminations for surviving.  For costing too much money.  Was I going to be vulnerable and do that to another person?  No.

Nobody had the answers, so I was going to wing in on my own.  It’s worked out pretty well so far, until America lost its mind and became the land of the haves and the have nots.  I even covered all of my expenses until my health could no longer keep up.

benefits

So, now I’m back to where I was as a kid.  I get an “allowance” from disability based on benefits that I paid into for 42 years.  However, the benefits come with a caveat subtext, “We can’t afford you.  Could you please hurry up and die already?”

Believe me, if it comes to being homeless or choosing euthanasia, I’ll choose euthanasia every time.  It would be helpful, though, if our government would admit that it just wants anyone not working, and not independently wealthy, to hurry up and die.  It would be helpful if they would provide a program whereby I could pick my final date and afford to live until I reached that point.

I really dislike having to buy a home in order to survive financially short term, and knowing that it will be an echo of my life that someone else will have to deal with once I’m gone.  Sad.

maxresdefault

2 thoughts on “Passing Through

  1. I seriously don’t know what to say. You’re tough and you’ve struggled to survive and that makes the ‘just hurry up and die already’ preemptive idiotic. I’m in your boat in a sense (minus the early trauma of delicate health), and if I could die, I would. The government hasn’t wised up to the fact that they need to start allowing humane (chosen) death options because it flies in the face of their so-called christianity (it’s not) and pro-life stances. Well to me anyway. How can you spout pro-life on one hand and hasten or allow ‘damaged’ people to die on the other? Hell they won’t even kill people who presumably deserve it (murderers, criminals etc). No answers here, but I will say it’s odd that you mentioned the scenario of “grow up, marry, have kids, die” as I was discussing just that with some women I know last night. It’s what was expected (and still may be expected for all I know) of women in this country. We were talking of a woman we all know who has searched for 60 years to find a suitable man. She found an unsuitable one along the way, had the kids, divorced and went a little crazy for a while. Now she has found another man and speculation abounds as to why (given the first one) she’d want a man and I said because we’re raised to “marry, have kids and die”. To me (who thinks marriage is a trap for one or both in the equation) THAT’S SAD. Hang in there. I’m sending back advice you’ve sent to me often enough. We’ll get through this until they decide we’re allowed the privilege of picking when we wish to be set free.

    Liked by 1 person

  2. Well, we’re allowed the privilege in CA, but the “Death With Dignity” law comes with so many caveats and expenses to document that it, too, is mainly for the well-to-do.

    I keep thinking that I’ll get the house in order and turn the second bedroom / bathroom into a rental situation, but that comes with so many strings for sharing your space that I don’t want to have to compromise short term when my money is waiting just off the horizon and taunting me with possibilities, if only people would get on the ball and make some decisions.

    I really hate this time of year for keeping me indoors and contemplating my navel. Nothing good comes from having too much time on my hands. 🎶 Too much time on my hands, I’ve got too much time on my hands 🎶

    Just ignore me. My attitude will get better when the weather does. Thanks for dropping by.

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s